Advisory Board

Executive Director, Rett Syndrome Research Trust

As Executive Director she oversees all aspects of the organization, including day-to-day operations, strategic direction, fundraising and communications. Together with RSRT’s Chief Scientific Office, Randy Carpenter, and with input from advisors and the scientific community at large, Monica sets and executes the Trust’s research agenda.

In 2010 she co-founded the Rett Syndrome Research Trust UK and serves as a trustee (organization now called Reverse Rett). She is an Advisor to the Tri-State Rett Syndrome Center at the Children’s Hospital at Montefiore. In 2014 Monica was asked to serve on the Advisory Board of SFARI.org   In 2013 she joined the Advisory Council for The Research Acceleration and Innovation Network (TRAIN) of FasterCures. She is a founding trustee of the American Brain Coalition. She was awarded Redbook magazine’s Mother & Shaker Award, alongside Katie Couric and Matilda Raffa Cuomo. In 2006, the Howard Hughes Medical Institute highlighted Monica’s efforts in the November issue of the HHMI Bulletin.

In 2015 Monica received an honorary doctoral degree from the University of Massachusetts Medical School.  Under Monica’s leadership at RSRF and RSRT almost $50 million has been raised for Rett Syndrome/MECP2 research.

While at RSRF Monica conceived of the Strollathon program and chaired the first event in Stamford, CT. The event was subsequently inherited by IRSF after the RSRF/IRSA merger where it remains a signature event.  Monica has an MBA with an emphasis in International Business from the University of Connecticut